Calista’s first tooth came through today. She has been rather cross and waking Ruth up through the night for a couple of weeks. Calista is very nearly six months old now, and is getting better at sitting up and supporting her head. She constantly rolls around on the floor, chewing anything that comes within reach.
Jasmine had a vomit this morning on her first feed of the day. Everything is trial and error at the moment, as she did without the NG-tube for so long, and now has a working kidney. She has seven medicines in the morning, which is a lot all at once, so we are going to try to spread them out a little.
On Friday Jasmine had bloods again and her tacrolimus level was back in its range 10-15, so we got the weekend off. The creatinine is still slightly high, but stable. Hopefully Jasmine’s bloods will be stable next week.
Jasmine is currently having all her feeds from the feed pump. She has to be involved at all stages. She likes to press the buttons as you set the pump up, and holds her NG-tube out when it is time to connect her. She then pulls on the line and pulls the feed pump over. If you move the pump she shuffles after it, so you have to sit next to her for the whole feed.
Isn’t it amazing how it all becomes so normal to them, thats so cute…she will be a doctor for sure (: Gavs still having issues, hopefully we will know more on Monday, hes leaking protein in his urine, so we are hoping it is not a rejection episode…totally freaking out (eating a lot of cookies to stay sane). Wow, thats a high tac number, how are you coping with all the new meds? How exciting aobut the first tooth, Evie started crawling this week, three mobile (totally out numbered). Take care!