Jasmine was discharged today. We had a very efficient nurse who had her new medicines organised and ready to go. Jasmine was discharged and home for lunch. It is brilliant to have her back. It is a bit of a shock though, as we try to get back into a routine of giving medicines, running the feed pump, changing dressings, etc. All of which we had handed over to the ward nurses for ten days. Her wound is healing up cleanly this time and is looking really neat.
Jasmine’s bloods are still unbalanced. Her tacrolimus level is high. Diarrhea and illness can cause the absorption rate to increase, and tacrolimus is actually toxic to the kidney. This could be one reason why her creatine is still a bit high at 53. However, surgery and viruses could also be causing the elevated level. She will probably need frequent blood tests until the levels settle down.
Yesterday Ruth took Jasmine for a mammoth ultrasound session. Jasmine was reading books and watching TV for an hour as the sonographer double checked every scan and compared them all to previous scans. Ruth’s nerves were shot by the time he finally said that everything looked normal and there is no dilatation. Good news!
I went for a Myofascial release session and got my scar tissue massaged. My shoulder has been giving me a lot of pain from my bad posture after surgery, but Ron has really been sorting it out. Another couple of sessions and some exercises and I should be back to normal.
This evening Jasmine was worn out and she fell asleep while giving me hugs, which was lovely.
So pleased to learn another hurdle is past. Hope the sessions and exercises get you back to normal Neil. Is it time for another alternative pizza? I wouldn’t like to overload the flat but think they are good for stress!!
I love your blog – your daughters look adorable. My 10 year old son, Jack, had his transplant at GOSH on 17th November so we are a few weeks behind you but can appreciate some of what you are going through. I am particularly interested in your recovery as I was the donor for Jack. We also have a blog – not as detailed as yours – if you are interested it is http://www.jackanddeborah.wordpress.com. Good luck to you all. Debs