Jasmine began dialysis today as she had been vomiting most of the night. I was very upset. However, it is better to get her used to dialysis when she is calm and stable, rather than waiting until she enters a critical condition and then setting it up in an emergency. They have started her gently with 30 mls an hour, every hour (10 mls per kg). It takes 30 mins to run the dialysis fluid into the abdominal cavity and 30 mins to run the fluid out again.
The dietitian came round today and said that they are going to fortify her milk again with SMA. Jasmine needs more protein to help her grow and the amount of milk she can drink on a good day is insufficient. Being a vegetarian with strong views on what I eat, drink and rub on my body, I had a bit of a stress about this. However, the doctor and nurses pointed out that these are the sorts of things I feel like I have some control over in a situation where I have no control. They are right. Today I stressed about SMA. Yesterday I worried about the sterilising unit. It is much easier to worry about the small things rather than facing up to the big things. Now I have calmed down we will tell the dietitian to do whatever is best for Jasmine.
Grandma Stalker arrived today and declared that Jasmine was very beautiful. The nurses think that Jasmine looks like me but Granny Stalker said that wasn’t possible and Jasmine must look like her. Very rude! Jasmine is very beautiful and looks just like herself.
Jasmine was sick twice whilst we were there and that was the end of the bile. She was wide awake and happy and sucking madly on her dummy like Maggie, the Simpson’s baby, which seemed to indicate that she might have had a good clear out.
Hope you’re feeling better Ruth…I hope you and Neil are both looking after yourselves. (Intensive care nurses are still bossy, even when you’ve left!)
Our thoughts and prayers are with Jasmine and you both. Take care of yourself Ruth.Hope your cold gets better soon and the stress diminishes as time goes by.
Hello – baby Jasmine looks a sweetie, congratulations! I’m thinking of you all (and thanks for the blog, I’m sure I’m not the only one monitoring the updates).