So we arrived today to see that Jasmine’s feeding tube was back in her nose. I was a bit sad but then it is really whatever works. She is still beneath her birth weight because she has been retaining fluid after her dialysis and when she has a fill, that is when they leave fluid in during the day, she absorbs that too. So they have stopped the fill and she has now dipped below her birth weight again. She is starting to fill out around the face though, so hopefully she will continue to put on weight.
Her nephrostomy was leaking again today and an urologist came up to check on it. He said it was ok for now and the nurses are keeping an eye on it. We took Jasmine for another coffee downstairs today and that was lovely. She likes the sling and snoozes quite happily in it. I like the sling too!
Tonight she just wouldn’t go to sleep. We changed her nappy, nursed her and kissed her. But she wouldn’t close her eyes and kept screaming. Apparently, she wakes up for her three hourly feeds during the night and screams for them too. So we were wondering whether she knows now that between 7pm and 8pm we get ready to leave her and go home. Eventually, we got her to go to sleep by playing her some mad soothing music CD collection a nurse had left in there the other day. Jasmine calmed down and fell asleep to a plinky-plinkety tune. As I said: whatever works.
Matthew would always fall asleep to “Dani California” by the Red Hot Chillis. He would also settle to a song with the chorus “I climbed aboard a pirate ship and the captain said to me…”. James once fell asleep to Metallica’s St Anger (?!!) and settled to “Swing Low Sweet Chariot”. As you say – whatever works.
Hello – Jos pointed me at your blog. I want to send you my best wishes! Glad to see you’re being taken good care of. Your baby has super-devoted parents.
Good luck.
kelsey