Jasmine Stalker-Firth

We had another clinic at Great Ormond Street on Monday. It is hard to believe that it is four weeks since the last one. That means that it is also time to do the stock take for the next delivery of dialysis fluid. Everyone was disappointed that we didn’t bring another baby with us. Ruth is VERY pregnant now!

Jasmine is still growing at 50g a week, slow but steady. Her bloods are generally ok. Her haemoglobin is a bit low so we are going to increase the epo dosage. Epo only comes in certain quantities, and is expensive, so we aren’t going to give 1500 units a week, but 1000 one week followed by 2000 the next week. That will save her from having separate 1000 unit and 500 unit injections. She is still too small to have the semi-automatic pen, and has to have a subcutaneous injection in her leg.

Jasmine’s cholesterol was high on one set of blood results, so next time she has bloods done we have to make sure she has no food for four hours before. We will give her some water though. Otherwise her blood is very thick and it is painful to get a sample.

The consultant said that we can start to think about transplants a bit more definitely and Jasmine should be able to be transplanted before the end of the year, which will be fantastic. There is a long way to go yet though.

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