Today we met the nurse in charge of the home dialysis programme at GOSH. She will be training us to take Jasmine’s blood pressure, and put her on the dialysis machine. She will be telling us how to prepare the machine, and what all the error codes mean. It is encouraging that they are planning that far ahead, as Jasmine will not be able to come home for months yet. We will need space to store the dialysis fluid, and somewhere to put the dialysis machine. The nurse will be visiting our flat to advise on the preparations.
Jasmine was taking most of her milk and medicines orally, and was looking about and sleeping and wriggling. There are still no signs of any infection, so hopefully the antibiotics have done their job.
We will also be meeting with Dr Rees once a week to check up on Jasmine’s progress, and ensure that she is growing well, and getting all the regular tests and immunisations she should.