Jasmine Stalker-Firth

Jasmine came home on Wednesday. Ruth went to buy a double buggy so that she can push Jasmine and Calista around together, then went down to the hospital. Jasmine was discharged and one of the nurses helped Ruth bring Jasmine home in hospital transport. It is amazing to think that it has only been eight days since transplant. It feels really good to all be back in one place together after staying in various health facilities across London.

Jasmine has her NG tube down again, to help with feeding and medicines. She is only supposed to go six hours between feeds so that her blood pressure doesn’t drop too much. She has to have her immuno-suppression drug, tacrolimus, every twelve hours, two hours after food, and one hour before. She also has to have her blood test just before a dose is due, to measure the trough level of the drug in her blood. This all calls for some careful scheduling.

Jasmine pulled her NG tube out so Ruth tried without it overnight. She had to wake Jasmine up quite a few times and it was difficult to get her settled again. Especially as Jasmine has roid rage from the steroids! She had to put the tube down again so that she could get some sleep.

Ruth has to take Jasmine down the hospital every day for blood tests, and has to take Calista as well, as I cannot look after her. On Thursday Ruth tried getting hospital transport. They were due to arrive at 8.30, to get her to the hospital for 9.30. The guy phoned up and said that he was going to be 45 minutes late because he couldn’t find any car seats. Ruth was ready to go, so she started walking. He eventually turned up and found Ruth, but didn’t know how to fit the car seats, and one of them was broken. Ruth just got a black cab in the end. We tried hospital transport, but sadly it was pretty much as expected.

Hopefully in a couple of days we will get into a routine, get organised on the medicines and trips to the hospital, and start to feel more relaxed.

This entry was posted on Thursday, October 29th, 2009 at 10:14 pm and is filed under home. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.