Jasmine’s cousin, Hannah, will be three years old tomorrow, so the other day Neil and Jasmine went to post her card and present. Jasmine realised the importance of this task and held onto the card all the way to the postbox. She is so clever.
Yesterday, was delivery day. Baxter (dialysis people), as usual, were really good, except the man’s trolley broke so he was a bit sweaty by the time he had delivered all the boxes of fluid and the rest of it. Fresenius (food pump people) were, as usual, totally rubbish and amaze me with their total inability to do something as simple as delivering one box of giving sets. I rang them up to give them a piece of my mind but Neil wrestled the phone out of my hand. Finally, the delivery turned up at 4pm in the afternoon whilst we were out. Neil took us all for a walk to the doctors and the chemist so that I wouldn’t strangle the delivery person.
When we got back, I reviewed the Fresenius food pump and even suggested improvements at no charge. It normally costs companies a lot of money for my professional services, but this food pump is so bad, it needs all the help it can get.
Things have been plodding on as usual – which is nice as that means we are not at the hospital. Jasmine has been vomiting loads, and either pulling out her NG or sicking it up. She only wimpers now when we stick it back down her nose. But she is so quick at pulling it out, I am always torn between being impressed and annoyed. We have been doing the machine and the dressing and injecting her and going to the chemist for all the medicines she needs as usual.
It was quite funny, as I was telling everyone down the hospital that it only takes me 12 minutes to do the machine. But pride comes before a fall. When I got home that day I was so tired I kept touching the walls and doing things in the wrong order, so it took me at least 50 minutes to set up the machine and my dressing change wasn’t half as neat as normal. We didn’t sit down to dinner until 8.30pm (dialysis duties always kick off at 6pm). Even getting Jasmine on her machine took me longer than usual. Neil said that it served me right for showing off. Too true!
When we went to GOSH the other day there were loads of press outside following the progress of the conjoined twins. My heart aches for their parents and I am so very sorry for their loss. We know exactly how it feels to sit in NICU and be told that your child might not live. We are holding them in our thoughts and praying for good news.