The website was down on Thursday and Friday, as Zen Internet’s servers crashed and needed replacing.
Jasmine looked even puffier today. The fluid seemed even worse. She had high blood pressure and the diuretics weren’t doing anything at all. Her creatine levels haven’t come down, her potassium levels are rising, and even though the left kidney has started remarkably to produce a tiny amount of urine, her kidneys haven’t recovered any functionality. She is losing salts and she is entering into a critical state.
They want to begin dialysis as soon as they can. We were warned that only two thirds of children make it through dialysis until they have grown enough enough to have a transplant. Along the way they may be seriously ill because of the dialysis and they may need to be fed by tube because they cannot absorb the necessary amount of calories needed to grow. There are no guarantees.
The doctor said that some families stop at this point because dialysis everyday is a major commitment and no one can predict a child’s quality of life.
Hi Ruth, Neil & Jasmine
It is a pleasure to see all your pictures…I hope that despite all the ongoing challenges you can stay strong.
Thinking of you all.
Juliet x
Hello Ruth and Neil -not sure whether you received my previous note:
We have been asked to pray for yourselves and Jasmine. you don’t know us, but we are friends of Jane Harvey in Hanwell, London. I am a Vicar in Suffolk.
We pray for Gods peace, his healing, his strength for you all.
God bless you
Jackie Sears