Today we went as a family to have some counselling down at GOSH. It was very good and we came away feeling much better. Most of the time, things feel manageable. However, some days we get a bit down with everything we have to do and the fact that we are here, the two of us, doing it alone.
It was lovely to talk to someone about all the stresses of having a chronically ill baby and how we are learning to cope with all the various things it entails. And it was great that there is someone paid to listen to us so that we don’t have to feel guilty about permanently bending my Dad’s ear or using up the precious time of the lovely GOSH nurses.
So! Counselling was good. We will be going back again and I would recommend it to anyone who feels like they are having a bit of a tough time.
Jasmine has been having a couple of rough days. She had a temperature of 38.6c the other night, but it came down after an hour. It wasn’t like the time recently when she had the scary rash and breathing difficulties, so we were quite relieved we didn’t have to rush down to the hospital, but we did have an hour of so of trying not to worry even though her fluid was clear and she wasn’t in pain (signs of peritonitis – the thing we check for morning and night).
But, even though the temperature came down, she did go on to spend two days vomiting really badly and having terribly smelly nappies. We think the worst of whatever bug she had is over as she is back to her smiley self and was jumping up and down with excitement this morning, as normal. Her two front teeth are nearly through now, and I still get a surprise each time she smiles at me with these big gnashers. They look great. She looks great. Neil is great too (in case he feels left out).
Jasmine is really into marmite breadsticks as they are good for chewing and ideal for her little fingers to hold onto and they are really tasty!
Hi Ruth and Neil,
This is a lovely picture of Jasmine. She always looks like she has a lot on her mind, which no doubt she does. So I can only imagine what goes on in your minds. So very glad you are getting some support in the form of counselling. Its important to be able to talk to someone neutral about all of your concerns.
Wishing you a peaceful and happy Christmas.
Jen xxxxxxxx
Right, now I’m off to find some of those Marmite breadsticks (yummm)